ALS Ice Bucket Challenge 金城武為漸凍人之冰桶挑戰 - 新聞報導區 - 金城武.NET 討論區

阿管

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#61

發表於 2014-8-23 20:38 資料文集短消息

現在的點擊率230萬

[ 本帖最後由阿管於 2014-8-23 21:26 編輯 ]

Rui

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#62

發表於 2017-5-8 00:13 資料短消息

回復 #14 阿管的帖子

HI Everyone and Kaneshiro-San,
I want to share a piece of good news. US FDA just approved a new ALS drug called Radicava, which has been used already in Japan with the trival name of edaravone. This is a progress for US patients. Much much research effort still ahead of course, but we should celebrate the steps in the progress. Just like Kaneshiro-San wrote on the video, we must work to help each day, and it's not a fad. Many patients, patient advocates, researchers, approvers and supporters deserve our congratulations for their tireless work. cheers, Rui
PS remember not all news are bad...

6830

阿管

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#63

發表於 2017-5-8 19:10 資料文集短消息

回復 #62 Rui 的帖子

Thanks Rui.

Newly Approved Drug for ALS 'Radicava' Costs Over $145,000 a Year

http://www.natureworldnews.com/a ... -145-000-a-year.htm

FDA approves first new drug for ALS treatment in 22 years

http://modernsurvivalliving.com/ ... atment-in-22-years/

Radicava/ Radicut for ALS
What you need to know
By Rachel Leung, May 7, 2017
https://thesocialmedwork.com/radicava-radicut-als/